My name is Tesa and I have 2 beautiful twin 12 year old boys. The twins, D’Marus (Mursy) and Domini’Q, were born at the exact same time, 04/18/03, at 27 weeks, weighing only 2Ibs. A short while after they were born, D’Marus had a severe stroke which caused his brain to bleed on both sides and left him with severe special needs and extremely medically fragile.
It was a long 4 months n the NICU. His condition includes hydrocephalus, Cerebral Palsy and Epilepsy to name a few. He has under gone over 10 brain surgeries including several other surgeries.
D’Marus, or Mursy, which is his nickname, is nonverbal and can not walk, he’s fed through a G-Tube and barely sleeps through the night. He’s on grocery bag full of meds for different needs, but if we can get him this medication, his Neurologist can start to whine him off the other meds.
The medication is an expensive oil that can help Mursy live. He has over 10 seizures in a day and his fragile body can’t handle much more. This is our last chance God is or only hope. What ever u can help us with… THANK YOU!